Health Care or Health Trade? A historic moment of choice, by J.T. Hart

Paper presented at European Network for the Defense of Public Health of the European Social Forum Anti-Summit Conference on Globalisation, Thessaloniki, 18 June 2003.

Since the 1970s, advanced medical care throughout the world has been dragged through a painful but apparently necessary and inevitable metamorphosis. This can be summed up as transformation of medicine to a system of material production, through which an infant culture of trying, based on faith, hope and mutual self-deception, has matured to an adult culture of verified doing, based on evidence, and measured inputs, outputs, and efficiency. Medical care has at last become recognised as a production system, an economy which can be analysed and measured. This could be either a major advance, or a strategic defeat for health care. The answer depends on who will control this new process of production, and whose purposes it will serve.

Britain was the birthplace of the first industrial revolution, which in one craft-based industry after another, successively destroyed the manual skills and supporting customs of individual workers, changing them from intelligent subjects with some control over their work process, into human components of an industrial machine. By the end of the 19th century, virtually no craft skills remained, that were not by orders of magnitude less productive than industrialised production. Productivity was an irresistible force.

Industrialisation of production met huge popular resistance. It violated custom and often broke existing laws, which at least nominally limited the extent to which employers could replace human skills by machines for manufacture. Laws passed by Charles II after England’s puritan revolution of 1648 even specified that machine breaking by craftsmen was legal, if employers misused machines to displace skilled manual labour, because the skills of labourers were their property, as much as machines were property of employers. Resistance was therefore able to draw on the huge potential force of popular conservatism, the almost invariable preference of common people for past devils they know to future devils yet to be experienced. Only when the English parliament failed to enforce these protective laws, did popular resistance become machine-smashing, in the Luddite riots in northern English textile counties in 1811-1812. Between 1809 and 1815, all laws regulating employers in textile and other mechanising industries were repealed, machine breaking was made a hanging offence, and many were hung. Though backed by a huge majority of popular opinion, by many landowners and small employers, and by cultural leaders like Byron and Shelley, the machine breakers were themselves broken. They fought to defend ground already won through past struggles, but they had no convincing outline of an alternative future, more productive than the subordination of men, women and children to machines. Their appeal was therefore to sentiment. Though this sentiment was shared by a large majority of people, they could make no claim to higher productive efficiency, and that is the rational test of history.

In the past 30 years or so, health workers and their dominant medical culture have entered the same process of industrialisation that defeated the handloom weavers more than 200 years ago, and in their present state, seem likely to share the same fate. Neither health workers nor patients like what is happening to health services, but they have not yet convinced even themselves, let alone their enemies, that they have any clear picture of an alternative, depending not upon sentiment, but on evidence that it will deliver health and health care more efficiently and with more effective imagination than consumerism in the globalising market.

Medical care is being industrialised because it has at last been recognised as a particular kind of production, with added life as its product. Through medical care, lives can now be made longer and wider. This product is no longer just a hope, resting largely on placebo effects and collusive illusion (as for the most part it was until around 1935) but a reality, growing exponentially as knowledge advances. Today, limits to this reality are set not by the boundaries of knowledge, but by ruling assumptions about the nature of the medical care economy. The minds of politicians with their hands on state power recognise only one possible kind of economy and one possible mode of production, capitalist production for the market, expanding not to meet human needs, but to maximise profit. They believe that if medical care is a production system, then its products must be commodities. Though they pay lip service to the needs of whole populations, in practice they assume these can be met by pursuing only the immediate demands of consumers, giving priority to the most profitable transactions.

For all other commodities, consumer demands are limited only by ability to pay, and the ability of advertisers to make people think that they need something more when they already have everything. When medical science makes added life a probability, or at least a convincing possibility, and when medical care becomes a commodity, two consequences follow. First: in a free public service, consumer demands will be unaffordable by the state. Second: in a free market, corporate providers will find infinite demand for a product of infinite perceived value – the ultimate commodity. We now have free markets for almost everything else, why not for health care? From the point of view of politicians in power, there is no need even to ask this question; they already have the answer.

In September 1996 leaders of US managed health care plans met in Mexico City to discuss opportunities for extending their business internationally. They had rapidly and profitably expanded their business at home to include more than 100 million US citizens, almost all those healthy and rich enough to be profitable customers. As one chief executive of a managed care plan put it, ‘We are soon going to run out of people in the United States.’

The managed care discussed at that conference was industrialised care, managing each individual process or episode to minimise costs without obvious loss of quality, perhaps even raising it. Though there is still no solid evidence that managed care has in fact reduced costs or raised quality, its advent did coincide with a plateau in hitherto rapidly rising US health care costs for the first time in two decades. In USA, where most health care was still in the hands of entrepreneurial doctors, managed care was an advance. For the first time, it made US doctors accountable to somebody other than themselves ‘ but not to the communities they served, but to for-profit corporations now closely linked to the State.

Managed care made health care extremely profitable for its first couple of years, until it collided with the costs of people with chronic problems, and without spare money. Health care for the ‘affluent worried well’ could provide huge returns for investors, so long as it had no responsibility for very sick, very poor, or very chronic patients. Schemes in which more than 65% of insured people made a significant claim during the year were not profitable. Competitive Health Maintenance Organisations selected and deselected their enrolled patients so as to leave care of these unprofitable people to the State, either to cope with them itself through some lower tier public service, or to purchase care from private agencies at public expense.

This policy, advocated by the World Trade Organisation, the World Bank, and by the EU ministers meeting tomorrow at Chalkidiki, is now generally known as ‘reform’. This is now being sent around the world, wherever governments can be persuaded to accept it. The chief outward port for this ideological export programme has been the UK National Health Service, now committed to partnership between for-profit corporations and the State. Step by step since the late 1980s, the ideas of US health economists, notably Alain Enthoven, have been imposed on the NHS, which has then been used for rehearsals of managed care in an inclusive public service the United States was itself unable ever to provide. European policy formers who understand the extravagance and incompleteness of US health care seem easily deceived by promises of large savings in cost and improvements in quality which will surely occur in England, as soon as the latest managed care reforms have had time to work. So far, these improvements have not occurred, and the problems ‘reform’ was supposed to solve have got worse.

In reformed care systems, managed care will be offered by competing providers in contract with the state. Though direct patient charges will be needed to limit consumer demand, much or even all costs may be met by the state, at least in the first stages while the public still remembers it once had a National Health Service. Unprofitable people, too poor, too sick, too demented or too incontinent of urine or faeces to attract any corporate provider, will continue to be provided for somehow by the State public service. There is no question of total privatisation, in the sense that medical care for the mass of the people will ever be wholly returned to the market. The new global capitalism is a true and devoted partnership between governments and multinational corporations. In the UK in the 1970s, just over 25% of government public spending (other than income transfers such as pensions and allowances) went to private companies. By 1996 this had risen to 60%, and is still rising.

Since 1945, much of the moral authority of postwar European governments has depended on making health care a citizens’ right rather than a purchased commodity. The United States is the only industrialised country, other than Turkey and Mexico, without universal health insurance coverage. Though all industrialised states have either signed up to the World Trade Organisation’s General Agreement on Trade in Services at Seattle, or hope to do so, even GATS recognises that traditionally free, universal and comprehensive public medical care services can’t simply be handed over to for-profit corporations overnight. European governments must proceed cautiously, first laying the foundations for market competition, before retreating step by step from responsibility. In the UK National Health Service these foundations have already been laid, by separating purchasers from providers, and by fragmenting care into marketable units. In principle, the purpose of the NHS as an organisation is no longer to plan and provide care itself, but to commission it from whichever providers offer best value for money.

According to classical economic theory, the way to contain costs is to introduce price competition for purchasers (not patients, but NHS governors and administrators). The way to improve productivity is to ascertain the most efficient way to do each procedure or handle each sickness episode, and then ensure that staff follow these production guidelines. The way to improve quality is to expose competing providers to consumer choice. The consuming public needs league tables that rank doctors and hospitals according to productivity (measured by waiting lists), and quality (measured by operative deaths, delays between admission and finding a bed, or similar indicators). When all this fails either to control costs or to improve quality, Enthoven claims this is because governments have not yet dared to let competition rip through the system, letting failing units go bankrupt.

None of this is what people want, either patients or health professionals. Guidelines for care have been prepared by expert committees, mainly composed of super specialists working in university hospitals, for management of all common specific disorders. Hospital doctors and nurses feel that they now spend more time meeting the requirements of guidelines than on caring imaginatively for their patients. Professional morale is now lower than ever before in my professional lifetime. Real people have more complex problems than can be foreseen by any guidelines. The commonest single clinical problem in European primary care is high blood pressure, but less than 10% of people with high blood pressure have this as a single clinical problem, uncomplicated by other disorders. Even if we exclude complicating social problems like bereavement, bad marriage, or unemployment, complex problems involving several different chronic disorders are not exceptional, but the rule. Solutions to these complex problems require a combination of clinical judgement and attentive listening to evidence brought by patients, their personal stories. If we want substantial health gains at affordable cost, we must accept complex, labour-intensive, continuing solutions, rather than larger, faster, industrialised production of episodic intervention processes.

Through managed care, guidelines are now being applied as frameworks for organising production of health care on standard lines. The quality of doctors’ and nurses’ work is now measured according to protocols developed from these guidelines, so that much clinical judgement has given way to checklist automatism. There is some evidence of positive effects on the volume, speed, and population coverage of some intervention processes, but huge negative effects on staff morale are obvious. Long before the advent of managed care, there were huge rises in productivity for process: between 1982 and 1991, NHS output per capita rose almost 30%, compared with 16.5% for the economy as a whole. Measured as procedures delivered, not health gain, this was obtained by eliminating long-stay beds, shortening patient stays, closing small hospitals, and intensifying labour throughout the workforce. All these trends were well established before the internal market. There is almost no evidence of positive effects on health gain, other than in a few specialised areas like early diagnosis and accurate treatment of breast cancer, and even these are probably caused mainly by eliminating amateurs at the margins of specialism, rather than managed care itself.

Let me give a typical example of how industrialisation works. A friend of mine is a consultant gastroenterologist, working with three specialist colleagues in a major regional unit in England. To preserve its funding, her hospital must demonstrate its efficiency, so each specialist unit within the hospital has to show high output and acceptable quality for whatever intervention processes are characteristic of each specialty, used as indicators of industrial efficiency. For gastroenterologists this includes endoscopy, searching for disease downwards through the mouth, or upwards through the rectum. Output is measured by number of endoscopies in unit time. Quality is measured by the rate of gut perforations, a potentially lethal accident occurring less than twice per 1000 procedures in units of acceptable standard. Obviously the efficiency indicator encourages work at high speed, less obviously the quality indicator may discourage investigation of old or frail patients at higher risk of perforation. Complex decisions about the balance of risks and benefits for each patient should be considered carefully both by clinicians, and by patients and their relatives, taking into account the resources and experience of the local unit, and the hopes, fears and attitudes of local people, but they should not be influenced by crude administrative targets. My consultant friend was rated worst in her unit for output efficiency, but curiously, unit nursing staff all said they would prefer her if they needed endoscopy themselves. They knew that if patients were in too much pain, discomfort or fear, she stopped, regardless of the effect this would have on measures of efficiency.

Health ministers, economists, administrators and managers are, with few exceptions, deaf and blind to the gross limitations of the industrial model of production and the market model of distribution when applied to medical and nursing care. This is the way most other goods and many services have been produced for the past 200 years, and their salaries and promotion may seem to depend on imagining no other.

The ultimate aim of the global wave of Neo-Liberal ‘reforms’ is to create profitable new markets for capital investment, and permanently to delete from the world’s political agenda public services, pursued not because they are profitable, but because they are needed. As we all know, the sickest people in greatest need are always least profitable, and therefore worst served wherever markets rule. The greatest profits can be most easily gained from the fears and envies of people who already have everything except peace of mind. As a system for distributing health care, marketing of any kind cannot reach the poorest and sickest sections of society, who then threaten the health even of rich people.

What I want you to consider more seriously is the failure of for-profit industrialised care as a production model. A systematic review by researchers at McMaster and University of Buffalo shows that patients in for-profit hospitals in USA are more likely to die than those in not-for-profit hospitals, even after all corrections for case-mix (which mostly favour for-profit hospitals). Over the period 1982-95, including 15 different studies of 26,000 hospitals and 38 million patients, this showed 2% higher risk of death in the growing proportion of US hospitals run for profit, than in the diminishing proportion of US hospitals still run by voluntary or charitable trusts or local government authorities. Another US research study compared the fate of the 67% of US patients with end-stage kidney failure who attend for-profit dialysis centres, with the fate of the other 33% who attend centres run as a non-profit public service. Over three to six years of follow-up, patients attending for-profit centres were 20% more likely to die and 26% less likely to be referred for a kidney transplant, probably because they then ceased to be profitable patients for dialysis. A further study comparing US for-profit Health Maintenance schemes with not-for-profit schemes found worse outcomes in for-profit schemes for all of 14 quality indicators examined. This was the most complete data-set studied so far, but eight other similar comparisons showed similar results, and only two showed no difference. In yet another comparison, for-profit hospitals failed to reduce costs to the State, compared with not-for-profit care. Notoriously, in US for-profit hospitals administration costs were 34% of all costs, compared with 6% in the NHS before the onset of ‘reform’ in the 1980s, and just under 12% after ‘reforms’ were in place in 2001.

If pursuit of profit fails in terms of quality and efficiency compared with previous public service, why reorganise care systems on an industrial model originally designed to maximise profit? The only excuse for this seems to be that nobody knows any other model, except the old system of leaving all decisions to doctors, with no accountability to anyone.

If health ministers, economists, administrators and managers can see no alternative, this must be because they are looking the other way. It stares them in the face. Medical care is indeed a productive system. Every encounter between health professionals and patients should have a product – greater mutual understanding of the nature of patients’ problems in the context of their personal life stories, on which joint decisions can be taken about clinical interventions. The most important variable in any health care system is less the quality of interventions themselves, than the quality of decisions to initiate them. These in turn depend on evidence brought both by patients and by health professionals, through which rational and appropriate joint decisions can be reached. At every point this evidence and these decisions relate not to engineering certainties, but to social and biological approximations and probabilities. Even the best guidelines for management of common clinical problems provide only a crude and usually obvious outline within which to make these complex judgements. Health care is, and will remain, an extremely labour-intensive industry, and why not? With fewer and fewer people required to make nearly all manufactured commodities, why not invest more people in health care, education, and other use-values which cannot be made into commodities, without fundamentally distorting and damaging their nature?

In terms of health gain, industrialised care will not raise but depress productivity. The industrialised machine we are offered is clinically inefficient and socially destructive, and neither health professionals nor patients want it. Instead, doctors need to develop as socially responsible and accessible human biologists, and patients need to develop as citizen co-producers of health rather than consumers. Neither development can occur within the machinery of industrialised care. Health care and education are the principal growing points for an entirely new and different economy, based not on trade but on gift relationships, aiming not to maximise profit, but to meet human needs.

These gift relationships provide the main hopes we can still retain for a humane global future, resuming history as an ascent toward higher civilisation, rather than a decline to greed and brutality. In our local schools, hospitals and primary health care centres we already have the beginnings of these relationships, supported by local customs with deep roots. These can develop further only through initially local working alliances between patients and professionals, and between students and teachers. Unlike the Luddites, we can develop a clear and convincing vision of a more humane, more efficient, and more sustainable future, where we can use machines to meet human needs. These beginnings are sacred; let nobody sell them, nor take them away.

REFERENCES

  1. Marx K. Capital: a critical analysis of capitalist production. Vol.1. Trans. Moore S, Aveling E ed. Torr D. London: Lawrence & Wishart, 1938. Marx’s analysis of the new social relations of production introduced by capitalism are based entirely on data from the British industrial revolution.
  2. The destruction of custom in industry. In: Hammond JL, Hammond B. The rise of modern industry. 2e. London: Methuen, 1926:97-109.
  3. Hart JT. Two paths for medical practice. Lancet 1992;340:772-5.
  4. Hart JT. Clinical and economic consequences of patients as producers. Journal of Public Health Medicine 1995;17:383-6.
  5. Smith R. Global competition in health care. BMJ 1996;313:764-5.
  6. Fairfield G, Hunter DJ, Mechanic D, Rosleff F. Managed care: origins, principles and evolution. BMJ 1997;314:1823-6.
  7. Terris M. Lean and mean: the quality of care in the era of managed care. Journal of Public Health Policy 1998;19:5-14.
  8. Glasser RJ. The doctor is not in: on the managed failure of managed medical care. Harper’s Magazine, March 1998, pp.35-41.
  9. Price D, Pollock AM, Shaoul J. How the World Trade Organisation is shaping domestic policies in health care. Lancet 1999;354:1889-92.
  10. For the Benefits of Patients ‘ A Concordat with the Private & Voluntary Health Care Provider Sector. London: Department of Health, 2000.
  11. Waitzkin H. The strange career of managed competition: military failure to medical success? Journal of the American Public Health Association 1994;84:482-9.
  12. Rowland D, Pollock AM, Vickers N. The British Labour government’s reform of the National Health Service. Journal of Public Health Policy 2002;22:403-14.
  13. Shaoul J. The economic and financial context: the shrinking state? In: Corby S, White G (eds). Employee relations in the public services: themes and issues. London: Routledge, 1999.
  14. Rovner J. US health care still pricey and patchy. Lancet 1998;351:1456.
  15. Mason A, Morgan K. Purchaser-provider: the international dimension. BMJ 1995;310:231-5.
  16. Enthoven AC. Modernising the NHS: a promising start, but fundamental reform is needed. BMJ 2000;320:1329-31.
  17. Hart JT. Hypertension guidelines: other diseases complicate management. BMJ 1993;306:1337.
  18. Starfield B. New paradigms for quality in primary care. British Journal of General Practice 2001;51:303-9.
  19. Rayner G. The ‘New Mandarins’ and the monetarisation of the NHS. In, Iliffe S, Munro J (eds). Healthy Choices: future options for the NHS. London: Lawrence & Wishart, 1997. pp.18-52.
  20. Journal of the National Cancer Institute 2003;95:230-6.
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  22. Devereux PJ, Choi PTI, Lacchetti C et al. A systematic review and meta-analysis of studies comparing mortality rates of private for-profit and private not-for-profit hospitals. Canadian Medical Association Journal 2002;166:1399-1406.
  23. Garg PP, Frick KD, Diener-West M, Powe NR. Effect of the ownership of dialysis facilities on patients’ survival and referrals for transplantation. New England Journal of Medicine 1999;341:1653-60 & 1961-3.
  24. Himmelstein D, Woolhandler S, Hellander I, Wolfe SM. Quality of care in investor-owned vs not-for-profit HMOs. JAMA 1999;282:159-63.
  25. Silverman EM, Skinner JS, Fisher ES. The association between for-profit hospital ownership and increased Medicare spending. New England Journal of Medicine 1999;341:420-6.
  26. Leys C. What works: public services publicly provided. www.catalyst-trust.co.uk 2001.
  27. Hart JT. Commentary: Can health outputs of routine practice approach those of clinical trials? International Journal of Epidemiology 2001;30:1263-7.
  28. Baumol WJ. Social wants and dismal science: the curious case of the climbing costs of health and teaching. Proceedings of the American Philosophical Society 1993;137:612-37.
  29. Hart JT. Two paths for medical practice. Lancet 1992;340:772-5.
  30. Hart JT. Clinical and economic consequences of patients as producers. Journal of Public Health Medicine 1995;17:383-6.
  31. Titmuss RM (Oakley A, Ashton J eds). The Gift Relationship: from human blood to social policy. Original edition (1970) with new chapters by Virginia Berridge, Vanessa Martlew, Gillian Weaver, Susan Williams and Julian Le Grand. London: London School of Economics & Political Science, 1997.

Urgent alert from Palestine Medical Relief, 14 June2003

Palestine Medical Relief and Palestine Monitor
URGENT ALERT

Stop Attacks on the Village of Deir Ghassaneh

Friday 13th June, 2003

Palestine Medical Relief and Palestine Monitor have just received an urgent call for help from the villagers of Deir Ghassaneh, near Ramallah in the West Bank. At 3am this morning, the Israeli occupying army surrounded and blocked the village, declaring a curfew. At 12pm some of the villagers heard cries for help. They discovered that the army was burying alive three of the villagers who were seeking safety in a cave. The soldiers shut off the entrance to the cave. The villagers attempted to rescue them but were shot at by the army. It is not known whether they have survived the attacks.

At around 5pm, the Israeli occupying army blew open the door of the Palestine Medical Relief clinic and invaded it. They also attacked several houses. In other parts of the village, the Israeli occupying army is shooting and arresting villagers. As of
yet, it is not known how many have been killed and injured.

Palestine Medical Relief urges you to respond to the calls for help that we have received. We severely condemn these attacks, as they constitute a gross violation of International Law. We call upon all humanitarian, human rights and health organizations to apply immediate pressure on the Israeli army and the Israeli government to end its attacks on the village of Deir Ghassaneh and
Palestine Medical Relied clinics. Please protest to the following:

Ariel Sharon, Prime Minister
Office of the Prime Minister
3 Kaplan Street, P O Box 187
Jerusalem 91919, Israel
Fax: +972 2 6705475 E-mail: rohm@pmo.gov.il

Elyakim Rubinstein
Attorney-General/Legal Advisor to the Government
Ministry of Justice
9 Salah al-Din Street
Jerusalem 91010, Israel
Fax: +972 2 6285438

Shaul Mofaz – Minister of Defense
Kaplan St.
Hakirya Tel-Aviv 61909
Tel: 972-3-5692010 Fax: 972-3-6916940

Mr Sergio de Mello – UN High Commissioner on Human Rights
OHCHR-UNOG
8-14 Avenue de la Paris
1211 Geneva 10
Switzerland
webadmin.hchr@unog.ch

For further information please contact + 972 59 254 218

Saluco: Red Cubana de Género y Salud Colectiva

Salud Reproductiva y edades extremas.
Boletín No. 2 Año 2 Junio 2003.

Boletín de la Red Cubana de Género y Salud Colectiva

Ateneo Juan César García, Sociedad Cubana de Salud Pública
Capítulo Cubano de la Red de Género y Salud Colectiva de la Asociación Latinoamericana de Medicina Social (ALAMES)

Coordinadora:
Leticia Artiles
Vicecoordinadoras:
Ada Alfonso
Celia Sarduy

Contenido

  1. Nota Editorial
  2. Aplicación del enfoque de riesgo en salud reproductiva del adolescente. Por Jorge Peláez Mendoza
  3. Conductas Sexuales de Riesgo: Inicio precoz de las relaciones sexuales. Por Jorge Peláez Mendoza.
  4. Eventos.

1er. Simposio Internacional “SALUD REPRODUCTIVA EN EDADES EXTREMAS DE LA VIDA DE LA MUJER”…

Populations are people: choices for rural health care, by J.T. Hart

Populations are people: choices for rural health care

Julian Tudor Hart
Santiago, 2003

According to conventional wisdom, in a free public service available to everyone, finite resources face infinite demands. Needs of individuals therefore conflict with needs of communities and nations. For public services to survive, we’re told that doctors must harden their hearts and make agonising choices; public services are under siege, so the people they serve must be rationed. For anything more, they have private care as a black market.

Let’s look at this, not from the Olympian heights of the London School of Economics, the Abril Report, or the World Bank, but from our daily experience as providers of care in rural-agricultural, rural-industrial, or now mostly post-agricultural and post-industrial settings, where everybody knows everyone else and it’s hard to hide. Of course there is conflict, and choices have to be made, but they are not those proposed by conventional wisdom.
From 1961 to 1987 I was responsible for leading primary medical care of about 2000 people, grouped in about 500 households, in a Welsh coal mining village. Glyncorrwg resembled villages you can still see today in Asturias. People looked the same; short, strong, and intelligent.
In my pocket was a diary, my balance sheet of my most important resource, available time. The hours in this diary set the limits within which I had to reconcile the wants of my patients with the needs of our community. Within these limits I had to determine in detail, from day to day and hour to hour, my tactical decisions. These were the products of two forces; pressures from personal wants and pressures from community needs. Rural clinicians know they must reconcile these within bounds of local custom, imagination and consent, requiring political skills usually lacking in higher authorities.
I was paid only to be a GP responding to symptoms, but my knowledge of medicine imposed larger responsibilities, unpaid but more rewarding to identify health needs, and organise answers to the problems they posed. Whether or not they are paid for all these roles, rural doctors with a critical and serious approach to their work must act simultaneously as GPs, as public health doctors, and as advocates for their patients and communities.
For example, my decisions about a patient sitting in front of me, close to tears, and about to tell me the true story of her recurrent orbital haematomas; that they were not caused, as she had many times insisted, by bumping into a door or falling downstairs, but by her husband. For five days a week he was a lovely man, but on the sixth day he started a weekend of binge drinking, becoming violent, sexually impotent but verbally and physically brutal, a danger and cause of ill health to everyone, himself, his wife, his children, and his community.
As I listen to her I hear also the hum of other patients in the waiting room. I estimate their number and their mood, and how far I can allow my consultations to lag behind their appointed time. I also consider how painful if is for this woman to reveal long concealed truths not only about her orbital haematomas, but also about her recurrent somatised depression (which once led to a completely irrational cholecystectomy), and her oldest child’s frequent absence from school. This is an opportunity not to be missed. Others must wait, because this truth can hugely improve the efficiency with which I use my scarce resources in caring for that family in the future.
People in our village were accustomed to such intuitive calculations; everyone had to make similar tactical decisions about rival priorities in their own lives. This always formed a large part of their moral agenda and political thought. In fact, though often not consciously, their most difficult problems were not these personal tactical choices of priority, but strategic questions about who controlled resources, and whose interests they served, which were beyond their individual control. That’s what being a community means; that its members recognise problems soluble only through social solidarity in sharing resources according to consensually approved needs, and of acting collectively to expand resources available.

People in my waiting room, seeing a woman with a black eye go in to see me, expected her consultation to last longer than the average 7 minutes I was able to give each patient when I first measured this in 1965, and perhaps longer than the average 10 minutes I reached by 1980. This collective judgement of the waiting room usually supported my personal judgement of individual cases.

Since those days, at least in economically developed countries, things have mostly got better; but people seem to have got worse. Medical care is becoming exponentially more effective; so much so that we are easily deceived that curative interventions have become more important than continuing care, that personal clinical medicine can discard its tenuous connection with public health, that solidarity must disintegrate into consumer choice, and that continuity has become obsolete.

These illusions are promoted by ideas of managed care as an industrially produced and traded commodity. They have emerged not from local experience or needs, but from Neo-liberal think-tanks and governments, the International Monetary Fund, the World Trade Organization, the World Bank, and newsmedia which speak and hear only their language. Even more fundamentally, they have leaked across the crumbling boundary between commerce and public service.

The World Bank’s global funding for health care rose from less than half the size of the WHO total budget in 1989, to about 50% more than the WHO budget in 1990, and well over twice the WHO budget by 1996.

Public health services everywhere are now suffering a global pandemic of “reforms”, transforming them from public institutions actually providing care into State purchasing agencies providing business opportunities. These will buy care from whoever offers most immediately cost-effective solutions, not primarily to help patients, but to enrich shareholders. They will buy care regardless of whether competing providers operate for-profit, are non-profit voluntary agencies, or are more or less inseparable mixtures of the two.

Apologists for Neoliberal “reforms” claim they are inevitable consequences of ideologically neutral technical progress. The era of big ideas, they say, has come to an end. First Francis Fukuyama announces the end of history, then Josip Figueras announces the end of big ideas about organization of health care. They believe all countries and all cultures must converge toward a single final economic solution for optimal production and distribution of man’s worldly goods, the idea first articulated by Adam Smith in 1762, The Invisible Hand of market competition.

Adam Smith was a great man, so great that his grandeur survives despite disciples who seem to know nothing about him, except his Invisible Hand. Here’s what he had to say about the State:

“Civil government” is in reality instituted for the defence of the rich against the poor, or of those who have some property against those who have none at all.

He understood that the profit motive could become a hugely powerful fuel, driving production faster than anything possible when all wealth and labour were tied to land or centrally controlled by kings. He also understood that this fuel was socially corrosive and potentially explosive. To use it efficiently, society required equally powerful cultural structures to hold it together.

In Adam Smith’s time these were provided by the Anglican Church and the monarchy. Today Britain has become one of the world’s most secular societies, and its monarchy has become more a popular entertainment than a social authority. Developed economies can be ruled only by consent, and health care has acquired a dominant role in maintaining this. A village doctor now offers more convincing miracles than any priest. Public health care and educational systems now provide most of such evidence as we have, that governments have any real concern for the people who elect them. Doctors, nurses, teachers and cultural workers provide most of the brains, eyes and ears for societies which without them, would have only stomachs and genitalia. So public service professionals have serious power in their hands, if they have the courage and imagination to use it.

Some of you will have read or seen The Citadel by AJ Cronin, published in 1936, made into a Hollywood and two television films. It’s still in print, and translated into most languages. It’s a shallow, sentimental story, but it gripped public imagination because it reflected more real experience than other medical romances.

One of its themes is the relation of clinical medicine to public health. Following an epidemic of typhoid fever in a remote Welsh coalmining village, Cronin’s GP hero Dr Manson forces replacement of a leaking sewer by blowing it up. Under cover of darkness and using sticks of explosive from the mine, he floats these down the sewer in cocoa tins, to explode a few minutes later. The public health doctor who advises the Council is portrayed as a lazy and incompetent bureaucrat. Attributing the event to spontaneous combustion of methane, the Municipality finally agrees to spend money on a new sewer, thus bringing their community from the era of typhoid and cholera into the 20th century.

There was a real model for Cronin’s story. In the early 1920s, while Cronin was gathering brief experience a GP assistant in the South Wales coalfield, Dr Bob Roberts served both as a GP and as Medical Officer of Health for a similar coalmining village about 35 kilometres further East. These two functions were in those days commonly combined. Dr Roberts was both a clinical and a social activist. To both roles he brought assumptions of unaccountability, still common today among enterprising GPs in the NHS, where they still serve as independent contractors, and therefore believe that primary care, though a public service, is still their personal property. Like Dr Manson, Dr Roberts faced recurrent outbreaks of typhoid from a decayed and leaking sewer, which the Council would not repair because it had no money. So he persuaded two young miners to blow it up, using precisely the technique described in The Citadel.

Cronin made the clinical activist his hero, and demonised the public health doctor as a useless bureaucrat. He presented an essentially social problem ” the lower priority for safe water, compared with ineffective measures for personal care” as soluble through individual acts of professional heroism (or terrorism, depending on your point of view) rather than social solidarity. In those days, local Councils in South Wales were so poor they could not even afford to immunise children against diphtheria. There was no central plan or funding for immunization in the UK, so each year about 3000 children died. In those same years central government, then as now, found enough money to bomb dissident peasants in Iraq, then a British colony. It was a matter of priorities.

Like Dr Manson, in 1966 I found a leaking sewer in my village. The sewage pipe crossed the river upstream from an area dammed each summer by local children to make a swimming pool, an illegal act long sanctioned by local custom. A young postgraduate student of microbiology happened to be studying this river further downstream for his PhD thesis, so I asked him to let me see his results. Meanwhile I drew the attention of the Glyncorrwg Council, of which I was then an elected member, to the leaking sewer. The Clerk of the Council, a local representative of God on earth of a type familiar to everyone who has worked in rural communities, denied that any leak could exist. The public health doctor advising the Council, as lazy and incompetent as the one in Cronin’s novel, said he was shocked that I, a professional man, could condone law-breaking by children swimming in the river.

The Council met again one month later. By then I knew that my microbiology student had found Salmonella typhi in his samples. “Do you mean the Salmonella typhi that kills people with typhoid fever”, I asked him. “Well, you know, I’m not a doctor, just a biologist. I couldn’t really tell you that.” He was frightened by his own results, too frightened to support me if I raised the alarm publicly. I took some coloured photographs of the leaking pipe, and showed them to the Clerk of the Council. “If we get any cases of waterborne infection”, I said, “I shall encourage my patients to sue both the Council and its public health adviser.”

The pipe was repaired the next day. I kept quiet about the evidence of typhoid bacteria. We never had any cases of waterborne infection from that river, so I shall never know whether my student’s findings were accurate.

Clinical and public health objectives are the same. Laziness and incompetence are enemies wherever we find them; no professional group has a monopoly of these evils. Primary care teams must define their aims and measure their success in terms of public health outcomes, not clinical interventions. Without this their work becomes ineffective clinical tinkering.

There is a fundamental unity between personal and collective needs, and between medicine and public health, essential for professional integrity. The choices entailed in maintaining this unity are those posed by reality, not by the market. In the real world, resources need not be finite and demands are never infinite. We have professional responsibility to make these truths known, understood, and acted upon, as advocates for our patients and their communities. Resourcing of public health services depends on political decisions prioritising different kinds of investment, different ways in which the whole social product may be used and invested to expand real wealth (of which health is an important part), and different ways this can be distributed. Medical care is a continuing social process, not a commodity transaction.

We have aging populations with rising expectations of what medical science can do to maintain health. Medical science is growing even faster than these expectations. This growth requires a rising proportion of the whole social product for investment in education and health care. We all know this is more important and deserves higher priority than investment in mobile telephones with video screens, computer war games, 100 synthetic flavours for ice cream, or anything else requiring all the resources of advertising to persuade us we need it. Political parties originally created to pursue progressive social agendas must either return to that path, or give way to new, more imaginative social formations that will fight to raise public service out of the marketplace.

The clinical determinants of public health indices such as mortality rates under 65 increasingly depend on techniques requiring patients to be not passive and transient consumers, but well informed, hard working participants, often for the rest of their lives. Where health workers are grossly under-resourced through virtual disappearance of serious funding for public health, the resources brought by their patients’ intelligence are almost all that they have, and their only means of exerting pressure to obtain greater material resources.

The imagination and intelligence of patients everywhere has always been the most important and valuable resource for prevention, for their own care and care of their families, friends, and local communities, and for social and political change. This resource is not finite or fixed. It expands in states that encourage solidarity and citizenship, and diminishes in states that encourage consumerism and social division. Health professionals have power either to promote or to discourage local participative democracy, to enlist patients as intelligent co-producers and thoughtful citizens, or to reduce them to consumer status. Programmes like the UK Expert Patient scheme and the Welsh advocacy programme could produce exciting results, if central government returned to a citizens’ agenda, as we hope to see through the Wales Assembly.

Nor are the demands on our material resources necessarily infinite. In classical economic theory, at zero price, demand for a commodity is limitless. This ignores the many costs to patients entailed in any continuing care process – above all, some loss of independence, and uncertainties entailed in all clinical decisions; the real price is never zero. Unlike producers of commodities for the market, doctors of integrity want their patients to be sceptical, to understand the limitations as well as the possibilities of current medical knowledge. As yet, the European Union has successfully resisted pressure to accept Direct-to-Consumer-Advertising of pharmaceuticals which has sent prescribing costs through the roof in USA and New Zealand. Resistance in Brazil, India, and many other developing countries is impeding the drive of US and European multinational pharmaceutical companies to maximise profits rather than health benefits through so-called intellectual property. We need to remind everyone that virtually all the great discoveries of medical science in the 20th century were given free to the world to meet human needs, not sold for profit. Jonas Salk gave polio vaccine, Howard Florey gave the penicillin production process, and Waksman gave all royalties from streptomycin for further research. Over half the funding for US pharmaceutical research still comes either from government or public charities. Medical researchers don’t need to become dollar billionaires. Why must the world get meaner as it gets richer?

Problems facing health workers serving rural societies are essentially similar throughout the world. Their access to centralised specialist agencies is poor, they are isolated from their colleagues and from recognised centres of innovation, time off call may be scarce or non-existent, their public care systems give even lower priority to rural than to urban funding, and recruitment of staff is difficult or sometimes impossible.

However, they also have some advantages. They are further from Washington, London, and Madrid. They know personally, and are personally known by, their patients and their communities. Continuity is still valued, and so are local institutions. People think more of themselves as citizens helping to build a better collective future for everyone, and are less susceptible to the illusory promises of consumer choice. Results of effective work are immediately visible and measurable, so that though rural practices are seldom recognised as appropriate for innovation or research, they may in fact achieve more than academic centres lacking roots in any community.

Whatever the dominant ambience, there is no part of any countryside where people struggling to pay their rent or mortgage do not greatly outnumber either new-rich refugees from the cities, or old rural aristocracy. We may easily underestimate how precariously governments now hold public imagination, and how close our communities already are to ideas that could move society to more intelligent priorities.

Writing in 1867, the conservative English journalist Walter Bagehot worried about the loosening grip of established authority through the Victorian monarchy:

“As yet, the few rule by their hold, not over the reason of the multitude, but over their imagination and habits; over their fancies as to distant things they do not know at all, over their customs as to near things which they know very well.”

The customs of rural multitudes as to near things they know very well include health services. For their future, they look to the opinions of local medical and nursing professionals and their own past experience, rather than government or newsmedia. In this they show sounder judgement than experts paid to discount every big idea that is not profitable, whose visions of the future depend not on imagination, but sponsored visits to California. At the point of clinical production, together with your patients, you hold the ultimate power. Use it.

REFERENCES

Ba?±os JE. Spain: the Abril Report. Lancet 1992;339:799-800.
Yamey G. Why does the world still need WHO? BMJ 2002;325:1294-8.
Figueras J. Health system reforms and post-modernism: the end of the big ideas. European Journal of Public Health 2003;13:79-82.
Adam Smith. An Enquiry into the Nature and Causes of the Wealth of Nations (1762). Oxford: Oxford University Press 1993, p.413.
Hart JT. Storming the Citadel: from romantic fiction to effective reality. In Michael PF, Webster C (eds). Health and Society in Twentieth Century Wales. Cardiff: University of Wales Press, in press 2003.
Frankel S, Ebrahim S, Smith GD. The limits to demand for health care. BMJ 2000;321:40-5.
The Expert Patient. London: Department of Health, August 2001.
Williams MH, Frankel SJ. The myth of infinite demand. Critical Public Health 1993;4:13-8.
Frey J. Selling drugs to the public. British Journal of General Practice 2002;52:170-1.
Toop L, Richards D, Dowell T. Direct to consumer advertising of prescription drugs in New Zealand. British Journal of General Practice 2003;53:342-5.
Baker D. Patent medicine. Journal of Public Health Policy 2001;22:275-9.
Hart JT, Thomas C, Gibbons B, Edwards C, Hart M, Jones J, Jones M, Walton P. Twenty five years of audited screening in a socially deprived community. BMJ 1991;302:1509-13.
Hart JT. Opportunities and risks of local population research in general practice. In: Gray DJP (ed.) Forty years on: the story of the first forty years of the Royal College of General Practitioners. London: RCGP 1992. pp.199-204.
Bagehot W. The English Constitution. London: 1867. Republished Fontana 1963.

Stockholm 2003 Declaration

In the final discussion at the Stockholm conference we tried to synthesise what participants had learned from the conference, with their own experience and understanding.

We produced three themes: a description of health care systems, in terms of their complexity; a critique of health system managerialism; and an agenda for change in European health care systems.

COMPLEXITY. We concluded that:

1. Health care systems are complex, because:

  • They are embedded in society, and rooted in culture
  • They are whole systems, not simple mechanisms
  • They reflect economic change
  • They are politically driven
  • They are about social relationships

2. This complexity is:

  • Sometimes a problem for individuals using services,although there is often a high level of public satisfaction with health services (except in the USA)
  • A source of stability but therefore of resistance to change
  • A management problem, that leads to managerial attempts to simplify the complexity.

3. To understand a part of a health care system you must understand the whole system.

A CRITIQUE OF MANAGERIALISM. We concluded that:
4. Current managerial approaches to system complexity define health and social care in terms of products (Fordist commodification), with the following consequences:

  • The development of panoptic control systems, and blaming the workforce for system failure
  • Pre-occupation with costs & prices, and with productivity
  • Itemisation of work tasks and outcomes
  • Concern with defining and measuring quality
  • Codification and standardisation of knowledge
  • Actual needs of service users are not met
  • The system becomes more complex, not less, and management becomes part of the system�s problems.

5. There are two other features of the current situation that are important. This type of managerialism emphasises the importance of regulation, but in practice this tends to be weak. There is a clear lack of vision within the system.

AN AGENDA FOR CHANGE

6. An agenda for change in European health care systems should include:

  • Basing all health care on not-for-profit institutions and organisations, and creating clear distinctions between the not-for-profit sector�s activity and that of commercial interests. This is distinctly different from a stakeholder approach.
  • A return to an understanding of whole systems, both for service users and for service providers.
  • Promotion of an awareness of common interests, as well as individual and national interests, through a continuous process of dialogue (for example, about the social implications of medical care)
  • Democratic and multi-disciplinary norm-setting, with needs defined and prioritised in a transparent process. The process of engaging citizens in policy decisions is the most problematic issue for those opposed to current managerial approaches. Norm-setting identifies priorities that will determine investment needs, and prices can be derived from this.
  • Strong regulation, using qualitative rather than quantitative �contracts�& professional training for self-regulation and self-evaluation, as mechanisms to create a system that develops dynamically.

Stockholm 25/5/03

Stockholm 2003 abstracts: Garcés, J. et al.

Garcés, J.; R?denas, F. & Sanjos?, V.

“Social Welfare Policies” Research Unit (SWP). University of Valencia (Spain).

Empyrical cost-profit analysis of long term care system from Social Sustainability Principle.

In view of the fast increase of social and health care demand in Southern European Welfare States, it is necessary to increase the efficiency of welfare systems by kept down public costs, according to the Social Sustainability Principle (Garc?s, 2000). That implies: 1) Keep down current levels of public investment (in terms of percentage of GDP); and/or 2) increase profits from better adaptation between offered resources and demand (increase of efficiency) and better sharing of care (increase of people who have the chance of using available resources).

We want to study the applicability of these strategies in long term care services for dependent people in health system. Worrying management and funding problems are being caused by growth of dependent people in all developed countries.

We have developed a quantitative approach with regard to generated profits when the chance of accesing to services is improved. For that welfare needs and features of people looked after in health resources in a Mediterranean place, Valencian Community in Spain, have been studied.

Our aims are: a) Calculate current cost of health care for looked after dependent people; b) propose new health care scenes; c) work out costs of the new proposal and economic saving respect to the initial one; and finally, d) calculate potential increase of health care coverage of which could benefit people with social and health care profile.

Contact:
Person: Prof. Jordi Garcés.
Mail address: Universitat de Val?ncia, Campus Tarongers, Facultad de Ciencias Sociales. Avenida de los Naranjos, s/n. 46022 Valencia (Spain).
E-mail: jordi.garces@uv.es

Stockholm 2003 abstracts: Marcelo Firpo de S. Porto

Marcelo Firpo de S. Porto

Researcher at the Brazilian National School of Public Health (ENSP/FIOCRUZ) and visiting researcher at the Institute for Medical Sociology / University of Frankfurt.

Globalization and Work in Brazil: recent trends and perspectives

Abstract: This paper aims to show the recent impacts of globalization in the Brazilian labor market mainly during the last decade. After introducing some general elements of the Brazilian economy and work conditions, such as fragmentation, authoritarianism and precariousness, the paper presents recent tendencies in the evolution of labor market. The increasing of unemployment and precarious conditions of work are understood as consequences of the impacts of globalization in this region. These trends limit the scope of structural changes pursued by different social movements after the end of the military era in the eighties. We conclude with some current challenges and perspectives in the moment that a new left federal government is beginning its mandate with the election as president of Lula from the Workers’ Party.

Stockholm 2003 abstracts: Sara Alander & Bo Burström

Sara Alander & Bo Burström
Karolinska Institutet

Economic strain and health among lone mothers in Sweden 1979-1998

Abstract

A more equitable allocation of resources in a society may lead to improved population health. The situation of lone mothers may be seen as a litmus paper on how equitable a society is, and the performance of its welfare systems. Swedish society saw great changes 1979-1998, making this an interesting period to study the effect of societal factors on lone mothers� health.

Purpose: study to what extent altered living conditions, manifested in economic strain have affected the self-rated health (SRH) of lone mothers compared to married/cohabiting mothers during 1979-1998. Study population: 22308 mothers aged 16-54, of which 19122 were married/cohabiting and 3186 lone (ULF-data). Exposure variable for economic strain: having had difficulties to make ends meet in the last year. Outcome measure: less than good SRH. Prevalence rates, risk differences and odds ratios were calculated.

All mothers saw increased prevalence of ill health and economic crisis. The increase was however larger in both relative and absolute terms for lone mothers. Those affected by economic crisis increasingly reported ill health. More lone than married/cohabiting mothers reported ill health. This overrisk was to a great extent explained by having experienced economic strain. The explanatory value of economic strain varied over time. Groups of lone mothers: young, low educated and foreign born reported even larger increases of ill health and economic crisis.

The increase of economic strain among lone mothers could be due to the design of the labour market. Deterioration of social security nets may also have contributed to more people being affected by economic strain. Increasing numbers are exposed to economic strain and with the increased vulnerability, more report ill health. The variation over time of the explanatory value of economic strain might indicate a larger impact on health of remaining poor during times when the state of the economy improves.

Stockholm 2003 abstracts: Rolf Gustafsson

Rolf Gustafsson

Social capital -‘social’ or ‘capital’ ?

Abstract

This lecture presents a critical analysis of the metaphorical concept ‘social capital’ (SC) which is widely used in public discourse. It reports several problems with SC both conceptually and in terms of possible effects on the public discourse. The time is ripe for a thorough analysis of the related conceptual apparatus including trust, interests, norms, egoism and altruism. A conceptual history of the social sciences ? la Hirschman’s ‘passions and interests’ follows: ‘Passions’ are historically first separated from ‘interests’, then norms/passions are set in contradiction to economic interests and finally neo-classic economic thinking pervades the social sciences with a theoretical passion for interest. This is the historical background to the present dominance of rational choice theories and ‘mixed models’ of human motivation implicating strategies to ’embedd’, ‘direct’ and ‘lubricate’ rational interests by norms and SC. The need for a concept like SC is created by this circular theoretical pattern that also traps the concept of trust in atomistic, instrumental and objectivistic perspectives. Adam Smith?s theory of moral sentiment is presented as an alternative that conceptually could re-integrate norms, interests and reflexion. Together with an Habermasian perspective, Smith’s analysis of recognition and respect render a shift of focus possible; from ‘how to enhance co-operation and economic growth by social capital, trust and confidence’ to ‘how to secure democratic deliberation in civil society in order to create warranted and reflexive trust’.